Rare Disease Day 2026 Westminster Reception

The Rare Disease Day 2026 Westminster reception is sold out! If you are hoping to attend, we encourage you to register to join the waitlist. If tickets become available, we will release them on a first-come first-served basis.

Genetic Alliance UK are excited to be hosting the annual Rare Disease Day Parliamentary Reception in Westminster!

Rare Disease Day is an annual international day aimed at raising awareness and highlighting the needs of people with rare conditions. The community will be coming together to recognise the day with parliamentarians, health professionals, policymakers, researchers, people affected by rare conditions and support organisations at the Westminster Rare Disease Day reception.

Before registering your interest, please note:

• This event will take place on Tuesday 24 February 2026, 18:30-21:00
• Registering your interest on this page DOES NOT confirm that you will be able to attend this event. We will be in contact following your registration to confirm that you have a space at the event.
• Due to capacity of the venue, we are currently limiting the number of tickets issued to two per organisation.
• Attendance by pharmaceutical industry representatives is restricted to Genetic Alliance UK industry partners. If you are interested in becoming a supporter, please contact justin.khodaiji@geneticalliance.org.uk.
• More tickets may become available so please register your interest to keep updated, even if the event has sold out.
• If you are unable to attend, please cancel your registration for the event to allow others to attend.

Refreshments will be available at the event.

If you have any queries, please email rachel.mceleny@geneticalliance.org.uk.

This Rare Disease Day event is run by Genetic Alliance UK as part of our nationwide Rare Disease UK campaign.

All of our information, policy and campaign events are completely free to attend. However, any donation, no matter what size, will help us to continue our mission to ensure that people and families living with rare, genetic or undiagnosed conditions have access to a final diagnosis, coordinated care and specialist care and treatment.

www.geneticalliance.org.uk/donate

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